I gather that the title of my blog is a good indication of how I see life, but just to clarify, I am an optimist. In my younger years, I think I even bordered on idealistic. I always try to see the positive side of every situation, and I surround myself with like-minded people. When you live in a world where you constantly interact with people with chronic illnesses, it’s hard to find friends that are of my same mindset.
When I stopped working, I was not in a very optimistic place. There was no end to my grieving for the loss of my career. I felt defeated and alone. I was sure that there was no one out there who could possibly understand what I was going through. It seemed like I was losing the very thing that had always defined me: my positivity. At that exact moment, a life saver was thrown my way, collectively, by the most amazing group of friends I could ever ask for. Did you ever meet someone and from the first moment feel like you had known that person forever? It was like that, but better. Here’s why. They really, truly understand. We all face the same challenges even though our symptoms are as varied as we are. We have the same sensitivities and we all struggle with the same social issues that make our friendship that much more important. We depend on each other in ways that far exceed the other relationships in our lives, not out of want, but out of need. We are all vastly different in almost every way, but we all share the one thing we hate the most: the MonSter. We come from all walks of life in our past lives, but now we are walking together. Between the lot of us, we pretty much have every single symptom ever documented, so when one of us has a new strange symptom, there is always at least one other person who has had it and can offer comfort. We lean on each other, even though each of us is as off-balance as the next! We have even talked about the fact that between all of us on a good day we might have two good legs to stand on. We also say that if we smooshed us all together into one person, we (might) make one relatively healthy individual. We laugh because it’s funny, even if it is probably true.
One time when I was a teacher, I was helping to facilitate a workshop for my colleagues, and I’ve been thinking about it a lot when I think about my MS family. In the presentation, we talked about how geese fly in a “V” formation, with one goose taking the lead at the center of the V. When he gets tired, he falls back, and a new goose takes the lead. That’s how my MS family is. When one of us falls back, the rest of us band together to be strong enough for all. It’s funny how I can’t remember why we used the goose thing then, and now after years have passed, I see the relevance to my own life.
Spending time with my MS family is always invigorating. It’s easy and it’s comfortable, and I always feel loved, appreciated, and understood. We laugh until our abs are sore and our faces hurt. It’s the best therapy ever! My soul gets filled up with a kind of happiness that only comes from them. I wish there was a better word to describe our relationship than “family”, but I am reminded of this quote from the book “Illusions”, by Richard Bach: “The bond that links your true family is not one of blood, but of respect and joy in each other’s life. Rarely do members of one family grow up under the same roof.” I couldn’t agree more!