This week marks seven years since I walked out of my classroom, thinking I would return in 2 weeks, after taking treatment for an exceptionally bad MS relapse. I never imagined that 9/27/2013 would be the last day I’d ever spend at the place that was my home away from home, the place where I spent the majority of my waking hours, the place that built my identity, and the place I loved so much it actually hurt. But those of us with Multiple Sclerosis know that MS does not play by rules, it does not discriminate, and does not go along with plans that you make, regardless of how carefully laid out they might be.
I left in pain, barely able to ambulate on my own, and full of sadness I felt at the thought of leaving my beloved students so early in the school year. I held onto hope that the treatment would work quickly and efficiently so I could get back to what I loved so very much. But like I said, MS is unpredictable, and the treatment that had helped me when I needed it most in the past let me down and had little effect on the storm brewing under the surface where no one could see.
Little by little, as I struggled through painful and exhausting physical and occupational therapy, my return to work date kept getting pushed back, and the vast majority of people could not understand that I did not have a firm return date. I wanted a return date more than anyone, and I was so frustrated because I felt like my body was letting me down. I always worked hard to stay physically fit and active, which I leaned on in past relapses, but this one was different. I was working so hard, and not seeing (or feeling) results, sending me spiraling into the deepest depression I have ever known. I felt worthless, lost, and missing a huge part of myself because I did not know who I was if I was not Mrs. Rankin.
The two best things I ever did for myself at that point were enrolling in a twelve-week wellness program for MS patients, and starting with a new therapist who specializes in treating those with chronic illnesses, specifically MS. In the wellness program, I met my MS family, a diverse group, ranging in age and ability, but our connection was instantaneous. I finally felt like I found a piece of me I needed to help build me back to where I was before. And my therapist mostly just listened to my cry every week for months until I finally started to feel better, but knowing I could never continue to do my job.
Making the decision to apply for long term disability was one I struggled with and kept putting off thinking I’d magically wake up one day just like my old self, and my students would walk into school with me at my desk at 5:45 am as usual. Sometimes with MS things go as quickly as they come, and I wished with all my might that it would happen for me this time. But no such luck. And at the same time I was feeling a deep sense of loss and grieving the community of long time co-workers who proved to me that out of sight indeed was out of mind. It was the perfect internal storm that made me feel so conflicted.
But the most amazing thing happened once I started to understand that my plan was not meant to be and that the universe had greater things in mind for me. As other friends left my side, my MS family embraced me, even with my many flaws. They were there for me (along with my many, many former students), as I fought to become strong again, and they supported me years later when I battled breast cancer, and again as I was given another lifelong diagnosis of diabetes. These are my people… my squad. They helped me find my place in the world again even when I thought I’d be lost as always.
My plan did not work out as I had thought, but I realize now that it was never meant to be that way. In this new life, I have found a sense of freedom, the ability to fully enjoy the time I spend with loved ones without having work constantly in the back of my mind, and a true appreciation for the ability to give my body what it needs when it needs it. Looking back at where I was seven years ago to where I am now is like night and day, and even though it’s not what I planned I am ever more grateful each and every day. Even during COVID times, I still find new reasons to be grateful every morning when my eyes open to a new day full of possibilities.
I will always treasure my days in the classroom, but I no longer get sad that I’m not there. I embrace it as a beautiful part of me and my past, and I am proud that I did it as long as MS allowed me the gift of being able to do the job the way the kids deserve for it to be done. This piece of my past is the biggest part of who I am, and I have zero regrets when I look back.
Being able to focus on me and my loved ones instead of my students and my school has made my life so much richer, and now I get to enjoy the best of both worlds… I can listen to my body and what it needs, but I also am surrounded by the love of my chosen family: those very special students (now all young adults) who have made it clear to me that they are with me no matter how many years pass, and I feel the same way for each of them. So instead of feeling sad, I feel blessed. It took a minute, but I couldn’t ask for anything more.
PS. Shout out to my chocolate sister and best friend for riding this wave with me, even though we no longer work together. She is the one I turn to still… and the gift of her friendship has sustained me for so many years now. ❤️