Monthly Archives: January 2015

Blizzarding

I have always loved the winter. As a child growing up in New England, I spent hours upon hours outside sledding, ice skating, building snow forts, or just laying in the snow. Frostbite was as common as a skinned knee in my world, and I loved it. I still do. I love the crisp air just before a snow storm. I love naked trees blanketed in a layer of snow. I love how falling snow makes the even the darkest night seem brighter somehow. But the best part about a really great storm now is having my little family safe and warm inside while nature does what it is meant to do outside.  

The beginning of the storm

Admittedly, Bruce and I are a bit freakish in that we love severe weather. We love watching the news and seeing how powerful weather can be. Whether it’s Geraldo hanging on to a tree in the midst of a hurricane, or the local newscasters reporting from the field during a snow storm, we just can’t get enough of it! It’s not that I enjoy seeing people suffer, but rather I am reminded that there are forces much more powerful than human beings out there. 

My little patio

My little patio

As a teacher, I never had much cause to worry about being out and about in the middle of a crazy snow storm. There is no greater gift for a teacher than a snow day. It is the one time when the work has already been completed. It’s a bonus day, which usually was spent grading papers or trying to get ahead on my planning. When I was working on my Master Degree, I swear Mother Nature was in my corner because it seemed as though every time I had a massive project or paper due, she came through with a snow day for me to focus entirely on that. The only way to make a snow day better for a teacher is for it to fall on a Friday or a Monday! 

Naked trees blanketed in snow. My favorite.

Naked trees blanketed in snow. My favorite.

This week, the media was hyper-focused on preparations for “The Blizzard of 2015”. Even though I’m no longer working as a teacher, I still got excited watching the school closings and early dismissals. Why? Old habits die hard. I used to always watch for my school district’s closing on the news, even though I had been informed by the “snow chain” that school was closed. I have no idea why. But I did the same thing with this storm as I did every single time for the 15 years that I was a teacher. I’m not sure that I will ever stop this little ritual, but I’m ok with that. It’s a reminder of my past life, and it’s one that I embrace. 

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Warm inside while the storm happens outside!

These days, snow days mean something very different. They mean that Bruce works from home. They mean that I can rest peacefully knowing he is safe and not on the roads. They mean that he holes up in the office, and I am comforted by the sound of his voice resonating from behind the closed door. They mean that we “meet” for lunch and then he’s back to work. They mean that when he finally emerges from the office at the end of the day, we always joke about the “rough commute” from the office. Predictable, yes. But I giggle every time. 

Paw prints in the snow

Paw prints in the snow

Nowadays, I don’t spend snowdays playing outside, but I do appreciate the beauty of the snow, and how the universe constantly reminds me what “powerful” really means. As long as my little family is safe at home, I’m prepared to weather any storm.  

The aftermath

The aftermath

Curls

I think it’s a pretty accurate statement that no one is ever truly happy with what they have in life, and that the grass is always greener in someone else’s yard. I spent most of my life fighting against what I was given and aching for what I perceived to be society’s idea of beautiful. It seems like a petty topic to write about, but it’s really symbolic of a much bigger issue.

As a child I felt that I had inherited the worst possible physical traits from each of my parents (sorry, Dad!). My sisters were thin and small-boned, while I was chunky with thick wrists and fingers, not to mention a back broader than most linebackers. They had long, beautiful hair and I had a thick mess of a mop that my parents insisted on keeping short. Think: chubby little white girl with a big, huge Afro! I cringe when I see pictures of myself before the age of about 13 or 14 years old.

Straight hair took at least an hour and a half with a flat iron (not including drying time!).

Straight hair took at least an hour and a half with a flat iron (not including drying time!).

As an adult, I spent a (not so small) fortune on the best straightening irons and products for smoothing hair, and spent countless hours fighting the curl, which in some way made me feel as though I fit in with society’s expectations. When my hair was straightened, I would inevitably get complimented on how great it looked straight, and if I wore my hair curly I’d inevitably be asked if I ever thought about straightening it. Walking through the  mall meant that the people who sold flat irons at the kiosks would harass me just for the opportunity to show me their amazing tools. If it seems as though this is a superficial topic, it’s actually a metaphor for how I have come to embrace who I am.

This was taken the day after my first "curly cut:".

This was taken the day after my first “curly cut:”.

Five years ago, I decided I had enough. Why was I wasting time and energy to change who I was? I made an appointment at a swanky salon in NYC that specializes in curly hair, and even braved a blizzard doing getting there.  The amazing part of this whole thing is that  my curls are oddly connected to my self esteem. Once I allowed my curls to be free, I finally felt like who I was meant to be. I mean, when have I ever followed the flock before? I got married in Las Vegas, made a decision early-on to not have children, and proudly have the healthiest marriage of anyone I know (albeit unconventional according to most people’s standards), so why was I trying to adhere to conventional ideals? When I freed myself of my flat irons, I freed myself from the pressure of fitting in and I learned to accept who I am.  Of course, I consider myself a work in progress, but this was definitely the beginning for me.   

You'll never catch me without my curls again!

You’ll never catch me without my curls again!

Perhaps the most valuable lesson I’ve learned from embracing my curls is the ability to focus on the positives in life rather than the negatives. I have always looked at my physical characteristics negatively because I insisted on comparing myself to those around me. So I might not have loved every aspect of my appearance, but I learned that there are parts that I actually even appreciate  now. I never could have said that before because I wasn’t open to accepting and (dare I say) liking my appearance. 

This is a picture from year 2 of my Project 365. In the description, I said that I didn't appreciate these thick curls until I learned how to treat them right. Amen!

This is a picture from year 2 of my Project 365. In the description, I said that I didn’t appreciate these thick curls until I learned how to treat them right. Amen!

It sounds silly to say that my curls helped me focus on the good things, but they did. They are a perfect representation of my personality. They are bouncy and fun…but most importantly, they are resilient: not bad qualities to have inherited, right? 

Strength and Balance

Last year, I was lucky enough to enroll in a 12-week wellness program for MS patients that changed my life. It really was my first step on the journey to understanding and accepting my new life. Each week, 7 other MS patients and I listened to guest speakers, ranging in topics from nutrition to guided imagery, to spirituality, to Reiki, just to name a few. We learned Tai Chi, got to know each other over lunch, and always ended the day with strength and balance class. Upon completion of the program, we would have access to yoga, aquatics, strength and balance, and spin classes.

Before I continue, I need to give a little background on where I was at that particular point in my life. I was at an all time low, having been out of work for a few months already, and wrestling with the truth that I was no longer capable of doing the one thing that defined me: being a teacher. I had put on 30 pounds of Solumedrol/Prednisone weight, and my confidence took a huge hit as a result. I was struggling with exercise because of a bad relapse, and I had no idea how to take back control of my body.

The woman behind the warriors. We love her so much!

The woman behind the warriors. We love her so much!

Then along came strength and balance class, and our trainer, Diane. Let me tell you how awesome this woman is! Even though she trains clients from early morning until late night six days a week, she comes to teach our classes on her “lunch” hour. She is passionate about helping us be the strongest we can be, despite our disabilities. She has no ulterior motives other than the pride she shares with every single one of our successes, even though they might seem small compared with those of her other clients. She is constantly researching ways to challenge us despite our physical limitations. She took a “vacation” over the summer for a few weeks, and she came back with more ideas for us, spending most, if not all, of her “vacation” at seminars and working to make our classes better. She is always looking to expand our program so that we can continue to challenge ourselves. After years of dead ends and failed attempts, she has even succeeded in adding a TRX class to the list of options for us. Her dedication to our wellness goes far above and beyond the title of “trainer” or “instructor”.

The strength and balance gang

The strength and balance gang: the best support group ever!

On the first day of strength and balance class, I could never have guessed that Diane would play such a huge, ongoing role in my life. She knows how to push me to my limit without going too far. She knows how to motivate me to push through even when I just want to quit. She recognized early that I like to be pushed, and she has celebrated every single achievement with me. The stronger I have gotten, the more I have practiced at home. Without a doubt this would not have happened without Diane’s support. She knows what to say to keep me working, even when I want to give up. I’m inching closer and closer to where I want to be, and I owe it to her for showing me the way.

The natural tummy tuck! I couldn't even come close to this when I first started with Diane.

The natural tummy tuck! I couldn’t even come close to this when I first started with Diane.

I’m not sure Diane knows just how much of an effect she has on all of us, but hopefully she’ll read this and she’ll know just how appreciative we are for all that she does for us. I admire her for so many reasons, and I adore her. She has changed my life by simply being a part of it. Not a day goes by that I’m not grateful for my MS family, and Diane is, of course, a member of the immediate family!

Side planks are not easy for anyone!

Side planks are not easy for anyone! It’s not perfect yet, but I am getting better all the time, thanks to Diane.

(As a side note, I realize that I flip back and forth between “I” and “we” in this entry, but there are moments when I am the voice of all the MS patients who have benefitted from Diane’s selfless dedication, and consequently let the first person singular/plural come organically as I organized my thoughts. The grammarian in me feels the need to justify!)

 

 

 

 

New Year’s Resolutions

It happens every year. People all over the world vow to make changes for the better in the upcoming year. The first thing my dad asked me when we spoke for the first time in 2015 was if I had any resolutions for myself. I told him that I stopped making resolutions for myself years ago.

Why wouldn’t I want to make resolutions to better myself each year? The reason I stopped was because many of the things I wanted to do were too easily derailed by circumstances beyond my control. It seemed that every time I made some progress on my resolutions, MS poked its mighty head in, reminding me that my body is no longer my own. As a goal-oriented person, I know that goals must be something to reach for, but that they always must be attainable. When I set a goal for myself, the perfectionist in me would never allow for failure. The result was a whole lot of self-disappointment when I failed.

It’s not a bad thing to have learned this though. I never wait until New Year’s Day to start something that I really want to achieve. Why wait for a new year to make self-improvements? I no longer make resolutions. Instead, I make just one promise to myself. I promise to be kind to myself. I have plenty of kindness for others, yet I do not treat myself well all the time. In my world, being kind to myself includes many things, all of which are important yet they are often difficult to remember.

First, and most importantly, I promise to take it easy on myself. I can’t accomplish tasks and chores as easily as my able-bodied peers. My house may not always be the cleanest, my refrigerator may not always me fully stocked, and my “to-do” list may not always be finished. I promise that I will not be disappointed in myself when those things happen, but instead be understanding and know that tomorrow is another day.

Also, I promise to do things that make me feel good, both physically as well as emotionally. When I eat well, I feel well. I promise to feed my body with the proper fuel to keep it running to the best of its capacity. I will do everything in my power to attend the Strength and Balance, Spin, and TRX classes that are available to me because staying strong is the only weapon I have at my disposal in this war against MS.

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Spin class, also known to us as the torture chamber!

Fueling my body with all good stuff.

Fueling my body with all good stuff.

Finally, I promise to surround myself with people who are equally as optimistic as I am. I will not waste energy on people who are not supportive and understanding, or those who are judgmental of me, and the decisions I have made. I will not allow the negativity of others to affect me on my journey towards accepting this new life of mine.

If you have made New Year’s resolutions in the past, and you’ve been disappointed in yourself if you didn’t follow through, I urge you to re-evaluate your position like I did. Just make one promise: be kind to yourself. I promise you will not regret it.