Monthly Archives: December 2018

Year to Year

Since this will be my last blog entry until 2019, I am sitting here co-writing with my other half. I know my readers always enjoy his contributions, and I couldn’t think of a better way to end the year here, especially since we just reached a big milestone in our life together.

On December 15th, we celebrated 24 years together…not married but together. For some reason, we’ve always found this anniversary more important to us than our wedding anniversary, primarily because of our long history prior to beginning our relationship. All those years ago we never could have imagined where this life would take us, in both good and bad directions. Don’t get us wrong, there has been much more good than bad over the last two dozen years, but when you’re faced with both MS and breast cancer diagnoses along the way it can sometimes seem like you’ve been dealt a bad hand. Thankfully, 2018 has been a much better trip around the sun than 2017 was, and for so many reasons.

Why was 2018 such an improvement over 2017? Mainly because of how quiet and uneventful it’s been. Some people might call an uneventful life boring, and may even consider it depressing, but when you’re constantly met with major challenges a nice stable, quiet year can be just what you need. At the start of the year, we were already in a much better place than we were twelve months prior. January 2017 may have been one of the most difficult months we’ve ever endured. We started the year having just gotten word of Rennie’s breast cancer diagnosis, and knowing that during the first few weeks she’d have to undergo surgery, testing, and the long, painful wait for her prognosis and treatment plan. And that was just to start the year. The remainder of the year we were forced to face Rennie’s six weeks of daily radiation treatment, countless oncologist visits, Ren’s fall down the stairs and her resulting broken toes, another fall in our dining room where she dislocated her finger, the death of our beloved dog Marty, and finally another MS relapse for her which forced her to change medications for the first time in almost a decade. Just writing that list out gives us both the shakes.

By contrast, 2018 has (so far…knock on wood) been a breeze. The gratitude we both have for a stable and quiet year can’t accurately be measured. It may not seem all that exciting to most people, but a year in which we were able to return to Vermont for another memorable vacation, travel to the Florida Keys with Ren’s family to celebrate Thanksgiving, adopt the newest furry member of our family (Squiggy), and have Rennie strong enough physically and mentally to begin yoga teacher training is music to our ears. And we’re both thrilled that we can spend most of our free time on weekends together, with nothing too important or earth-shattering to contemplate.

Squiggy was a happy addition to our family in April. Here he is draped over Rennie’s arm. Clearly he is not comfortable in his new home at all! šŸ˜‰
A beautiful Vermont sunset.
When standing in front of a cool wall in Burlington, Vermont, why not strike a dancer’s pose? If you are in yoga teacher training, you do.

As you’ll notice, this year-in-review post is a short one. And that’s a good thing. But we’d both like to take this time to wish all of the loyal readers of this blog a peaceful holiday season, and a happy & healthy new year. As usual, Rennie will be taking the next few weeks off to be fully present with family & friends, and will return here with new entries starting on January 8th. Same bat-time, same bat-channel.

Holidaze

Heading into the holiday season, I find myself conflicted as usual. Along with the festivities of the season comes an outrageous amount of stress. So how does one reconcile those two blatantly opposing emotions? 

Because I get very anxious in crowds these days (because of vertigo and lack of balance), holiday shopping only happens online for me. As much as I don’t at all miss the cranky people who clearly take no joy except by making other people miserable, I do miss actually being in a store and being able to touch the things I wish to buy before making the purchases. I do miss the energy, the excitement, the music, and the decorations. While these things all played a large part of the season in my past, I have undoubtedly learned what is most important by living in a world full of accommodations. 

Holidays, Rankin style. Happy Christmakuh!

While Multiple Sclerosis is not something I would wish upon anyone, I am happy to share the lessons it has taught me because, after all, once a teacher, always a teacher…

First of all, the hell that is Black Friday has never sat well with me. This may be leftover from my years as a retail manager. But the truth is that I would never sacrifice time with my loved ones, nor would I sacrifice precious sleep, in order to get a good deal. Black Friday perpetuates the commercialization of a holiday that is meant to be about something far more meaningful. Ultimately, the actual gifts are unimportant. It’s the thought behind them that makes them special. I’m not a religious person, but I am spiritual, and I find comfort in the goodness of others, especially during this season. Fist fighting over a flat screen TV at 3 am, or trampling one another trying to get in the store first on Black Friday is definitely not how I envision the spirit of the season. 

Marty (RIP) thought he was the best gift ever the first year he was with us!

For me, I have definitely learned to scale back on the superficial gifts, and instead look for more meaningful ways to enjoy the season. Spending time under one roof together with loved ones, sharing a meal, listening to music, telling stories, and playing games has become the norm for me. 

I no longer host a big holiday event because I recognize my limitations. I am happy to attend celebrations (as long as I am feeling physically able), and I bring whatever is asked of me, even if I end up purchasing it from a bakery or the grocery store. This means that I don’t stress out about making sure that my house is clean enough for company and fully decorated for the season. Whatever I get done is good enough and the pressure is totally off of me. 

I LOVE my village so much, but now it’s just too hard for me to even handle the delicate little pieces. One day, Luke will do this for me.

I find it hard to truly appreciate the beauty of the season (both physically and metaphorically) as long as I am surrounded by cranky, combative people, who really should just pull the covers over their collective heads while the rest of us can easily be reminded about what’s most important, not just during the holidays but throughout the year as well. 

It’s a selfie in an ornament that says Merry Christmas in German!

My top priority is being 100% present with my loved ones. The only reason for any device (for me) is to take pictures, but I do not get so lost behind my camera so as to not physically witness things like the wonder in my nephew’s eyes as he looks at the tree, or the feeling of him lounging in my lap. I will not allow my camera to block how it actually feels to be surrounded by the love of my family. While I never waste an opportunity to express my love and gratitude for feeling supported and unconditionally loved, during the holidays it’s actually palpable. 

These moments that we are given are gifts, and in the blink of an eye, everything can (and does) change. So put away your devices, forget about social media, and just allow yourself the freedom of living in the moment and truly feeling the joy. I promise you it is the best feeling in the whole world.

No Christmas is complete without a selfie with my guy.

Perfect Strangers

This week I am writing about something Iā€™ve written about before, but this time I am going to be a hell of a lot more specific than in the past: social media.

Itā€™s something that is so embedded in our lives now, and when I meet younger people they are fascinated that I actually got my undergraduate college degree without the benefit of the internet. But I swear itā€™s true!!

Even early on in my diagnosis with MS the internet was so very different than it is today. Now we can find valuable information from reliable sources, in addition to ā€œsupport groupsā€ for just about anything. Lucky for me, because I never found a good in-person support group, and even the ones I found on-line were not jiving with how I live my life: positively, hopefully, and gratefully.

After a long time, I discovered my perfect MS support group on Facebook, which is specifically geared towards MS and exercise. This group is the most positive, uplifting group of MS patients you will ever find. We donā€™t allow discussion about diets or treatments, but we support each other on our fitness journeys, which are all unique to each person but equally as challenging for all of us. We also support each other through every day challenges but we maintain our focus on exercise because all of us believe passionately about the benefits MS patients experience by simply keeping our bodies moving. Through this magical group, I connected immediately with someone who I consider a dear friend. Itā€™s true we have never met. We message each other almost daily, sometimes even voice messages, and I canā€™t imagine my life without her.

We both have similar views on the world of MS, and life in general, and I feel like I have known her my entire life. We understand each other so well and we even became co-administrators of this support group when the person who started the group and was the sole administrator decided to step down. Ā Together we have been working to keep the group (which has grown tremendously) the way it was intended from the beginning: a safe, comfortable environment to discuss our challenges but also to share our accomplishments, with the hope of inspiring each other along the way.

So how is it that I can feel so close to someone Iā€™ve never physically met? I mean we literally have spent many a day thinking of weekend getaways that we can take together, whether itā€™s a yoga retreat (because surprise! She is also a yoga-lover), a spa, or anything in between. Iā€™m so grateful that social media has allowed me to form a deep bond with such a special person. We are so much alike that I used to get surprised but now, I just expect that her responses will be my thoughts exactly.

Some might say sheā€™s a complete stranger, but to me she is a dear friend, a sister, and most definitely a treasured member of my tribe. I canā€™t imagine my life without her, and I am hoping that we will make our girlsā€™ weekend a reality in 2019.

Thank you, Melissa for being in my life… for your love and support, and for just being who you are. You make my life sweeter and I am so happy we found each other. I know this isnā€™t a real picture of us together, but I know we will have plenty as the years go by. I love you for who you are (a frigging kick-ass rock star), and for all that we share. Now letā€™s get on those plans for a getaway and take some real pictures!

This is my girl Melissa. Obviously we have never been together to take a picture like this, but i know that we will make it happen.